U.S., Feb. 9 -- ClinicalTrials.gov registry received information related to the study (NCT06251843) titled 'Support Strategies for Parents During the First Year Following Their Child's Diagnosis of Sickle Cell Disorder' on Feb. 1.
Brief Summary: Background: Sickle cell disorder (SCD), the commonest genetic (faulty gene inherited from both parents) condition in the UK, affects mainly underserved groups. Babies with SCD must start treatments soon after birth to prevent them becoming unwell. Stigma, fear and inequalities can make it difficult for parents to accept their child's diagnosis and access appropriate treatment and support.
Aim: Develop strategies to improve support for parents during their child's first year of life following a SCD...